Romee Dussenbroek || Media Creator
Let's get to know each other! What's your name? age? where are you from? what's your life motto?
Hi Romee. My name is Karen and I am from Canada.
Hi Romee, I have to share I have never written to any stranger on the internet. I'm not one to comment on any sites or at least most of them but your story has greatly touched me. I feel a need to write to you especially since you shared your latest video - which was so brave of you to share. I would not have had such courage. I just want to offer some thoughts and maybe a few suggestions. As they say in the 12 step programs - Take what you need and leave the rest. I am much older than you and a cancer survivor and I'm still dealing with my situation in so many ways. Here is what I have to offer - I hope it will be hopeful and more importantly helpful to you. The other day I heard the spiritual teacher, Deepok Chopra say that when a doctor gives you a diagnosis - Listen to the Diagnosis but not the prognosis. You are not a statistic, you are a person - no healthcare professional can determine what ultimately will happen - you can follow their expertise as you use your intuition but you can take some control back in your mind and live a good quality of life as more discoveries and drugs are developed that help you live longer. Some of the ways that I took my control back when I felt helpless are the following: I began to practice meditation and calm my mind on a daily basis. I regularly do exercise of some sort, yoga, swimming, walking, dancing whatever gets your body moving to gain more energy. And recently I have started an intermittent fasting regimen. There is a theory and ongoing clinical studies that fasting and lowering the blood sugars can prevent progression - also lowering carbohydrates in the diet. Why not consult a nutritionist that is familiar with oncology about this? This can take awhile to get used to but it just may lessen your progression, you never know. There is a doctor on youtube named Dr. Jason Fung who helps people learn how to do fasting in a careful way. He has also written books on the subject. Check him out. If you have the money for acupuncture - that can help with lowering stress and boosting your immune system. It's very important to lower your stress why you work on your healing. If school is stressful, ditch it for awhile...if it's helpful, keep doing it. But get your rest and centeredness back into your life. Control what you can control (diet, exercise, holistic health measures and positive, calm mental state)
and let your doctors worry about the rest. Also, I have an integrative health center that has many free programs for cancer patients. Now during the pandemic, they are on zoom and are free - I would think the netherlands being such a progressive country would have something similar. Ask the hospital if they know of such programs you can take part in. Keeping the faith and working on healing self is a bit of a job...but I can tell you from my experience with cancer, it makes a whole lot of difference. I have to say I am so impressed with you - you are such an authentic person. A person of great beauty, kindness, intelligence and humility. You are helping people in these scary and difficult situations right now with your videos. I think as you start having a stronger confidence and belief in your healing abilities (even though we, as patients) just do not know our future outcomes - we can live with greater confidence, peace in the present. I am with you Romee whether or not you implement any of these suggestions, I wish you all the best and you are in my thoughts. Feel free to comment back should you ever read this and remember, take what you need and leave the rest. In Solidarity, Mindy
Hi I’m Vanessa or Ness to my pals,
om a musical theatre actress and my last contract was March 2020 then lockdown happened! I’m lucky that I’m staying with my Mum in Lincolnshire in the UK which is a relatively safe place and covid is very very low if at all here.
I am very poor but very grateful for my family. I hope to be working soon and things are slowly opening up again.
Hi, I'm Stefan, from the beautiful city of Plovdiv, Bulgaria. I'm 39, and I work as a copywriter and am also doing a second bachelor degree. I can't say I live by a motto, but I do have a dream or two. I would love to sail for year or two, but don't have a boat yet..And I wpoul love to visit the Gobi desert in Mongolia.
Hope you are all doing fine during these crazy times. Romee, stay strong and keep at it. Best
Hi, my mane is Sergio, I live in México, I'm 46 although a lot of people find that hard to believe - they usually think I'm younger - I have a couple of freidnds from the Nederlands, one in Hilversum, and another one in Amsterdam, both of the nicest people I've ever met... Believe it or not, it looks like we have very similar sense of humor. I feel so grateful that I ran into your YouTube channel, not for the cancer insight, but because of what a beautiful person you are inside and out. It would be a privilege just staying in touch. You have a Mexican Fan in me who wishes you all the best and who can also be a good listener if I might be of some help. I can only say: You're wonderful.
oh, you mentioned "life motto"... For a long time I've kept it 'if you've become part of the statistic, best try to be part of the solution" - but that's mostly for some health setbacks I've had.
Hi Romee and all; my name is Niamh (aka Nini) and I'm from Ireland. I'm 22, a media graduate, and a survivor. I say this because of all things gone awry... I sure have taken the brunt of it. As an abuse survivor and riddled with health issues, I like to remain positive and strive for personal growth. I hope everyone is doing well today! If I were to have a life motto at the moment it would be "in the game of 'survivor', there is no time for regrets" - Jenna Morasca. Very thematic.
Thanks for taking the time to read this introduction! ♥
I’m glad you’re here, Nini. You are so strong.
Labas! My name is Victoria, I'm from Lithuania - a small and cozy country on the shore of the Baltic Sea. I'm 24 years old, generally a cheerful and optimistic person but deeply buried in clinical depression and prone to constant and intensive self-harm. I've lost my job, I've quit my studies. I know you are going through much now and I understand how depression can worsen and mess everything even more. I wish you lots of mental and physical strength, many good and loving friends beside you (both offline and online) and for all of us (your loyal and supporting Team Romee) I wish to see your happy face and heartwarming smile more often and for many many happy years.
Hi, my name is Lin, I live in the Nederlands and i'm 18 years old. I'm in my fifth year of high school and i hope to become a docter when i'm older. I like to play board games and I play the sport volleybal. I love to listen too good music and to meet new people. I hope everybody is doing well and has a great day. XXX
My name is Maddie. I am 27 years old. Born in Poland, but spent most of my life in Ireland. I am a final year student at Trinity College Dublin. I am hoping to one day become a doctor, but currently struggling to figure out how to pay for doing graduate medicine in Ireland 😅
Still trying to figure my motto in life, to be honest.
I visited Ireland in 2018 and loved it. We took a tour of Trinity College. So beautiful. I hope to go back. I live in Dallas, Texas.
Hi my name is Kathy I have 4 grown children and 7 grandchildren. I'm a paralegal and live in Dallas, Texas. I love to travel and read. I wish nothing but the best for you Romee.
I'm 53 yrs old, a former pilot, a husband and a dad. I lost my first wife more then 20 yrs ago because of the plague called cancer, and now tries to support other affected by the same illnes.
Hi Romee, my name is Avery and I’m a 15 year old living in Seattle, Washington. When I was 11 I was diagnosed with extremely rare, extremely aggressive, brain cancer. To be specific, Atypical Teratoid Rhabdoid Tumor (ATRT), a tumor which is so rarely found in people my age and almost always in infants. For context, there was only one other kid in the world who was my age who had this same tumor. And my tumor happened to be placed at the very center of my brain, in the pinnacle of my being, the pinnacle of my personality. My chances were so very grim, not only to be cured, but simply just to come out of treatment as me. One of my primary surgeons advised my mom not to have me undergo the life saving surgery that would ultimately remove my tumor, at the cost of my life, as she thought a few more weeks of living as myself was better than a lifetime of being stripped of it (locked in a body that probably wouldn’t move by itself or be able to say or comprehend words). But miracles happen, and somehow I would come out of that surgery unscathed with all but a little loss of dexterity and disconnect which would come back after a bit. Throughout my journey I endured radiation treatment, six, month-long rounds of chemo, blood transfusions (due to infections), incessant vomiting, five brain surgeries, seven feeding tubes, complete hair loss, inability to walk (due to my chemo causing my foot mobility to be stunted), a lot of stuffed animals, sadness, and hope. I know right now if feels like everything is falling off the walls and the world you knew is being destroyed. But I am going to tell you that you will get through this. And when you do you will rebuild. It may not be the same as it was before, and your hair might not be as prime (yours probably will be, mine is just a lot thinner because of the radiation I had to undergo which like pointed lasers at my head) but it will grow back. Yesterday was the four year anniversary to me being NED, or No Evidence of Disease. I pray that this day will come soon for you. I know you can do it. You’ve got a fighting spirit which cannot be denied. And remember that it is okay to be scared and not be okay too. I’m always here if you need a cancer buddy to talk to. Cancer is the worst club to be in, but know that its numerous members will always support you.
All the best,
Wow! My younger sister is your age and I can’t imagine having gone through so much already at 15. You’ve overcome more already than most of us will in our lifetimes. Thank you for sharing your story! I’m so glad you’re here to tell it 💗
Hi Romee! My name is Chris and I am Florida in the U.S. My birthday is on January 21. I will be 45 this year (2021). I currently work 2 jobs. My full-time job is in television. I am a program and content scheduler for 4 TV stations. I've been in this career for 20 years. My 2nd job is working as a rideshare driver for Uber and Lyft which I've been doing for nearly 5 years. I have multiple birth defects, have undergone 55 surgeries since I was 10 months old and currently use a wheelchair to help me get around. My life motto is make the best of each and every minute because you are never promised the next. Love and appreciate you so much, Romee! Keep fighting!
Hi Chris !! Nice to meet you !! Maybe we will work together in the future!! I want a full-time job in television as well. Super cool that you do that. Love your life motto. Please take care!
Hi! My name is Julia and I'm 20 years old, I live in Poland. I study law and humanities (mostly literature, antropology and polish language) at the University of Wroclaw (formerly known as Breslau). My hobbys are cooking/backing, classical literature, sport (just not to stay passive, streching), criminal cases and watching people dancing (I love ballet and figure skating)! The love of my life is my dog, 8 years old Achiko who represents japanish breed - Akita Inu.
I try not to loose my temper and be kind and good to everybody :) My golden thought since junior high school has been "Myśl i panuj nad sobą", in english: 'bear and control yourself'.
Stay save and positive guys <3
Hi Julia! Nice to meet you. I had to reply because I had a Shiba Inu, Korso, loved him so much! And now my parents actually have a Shikoku (also a japanese breed) GREAT to see this picture of Achiko. Warms my heart.
I also love watching people dancing even if I am not dancing myself. :D Recently I discovered the youtube channel of the London royal opera house and they also have some rehearsal videos of ballet (for example Alice's adventures in wonderland) and somehow I think they are very interesting also for me.
@Romee Dussenbroek I'm so glad that you replied! That means a lot to me, because you're the first Youtuber who has ever written back to me :) (and you're not a 'small' Youtuber anymore!)
I hope you're doing well and also your Korso is fine.
Love from Poland,
Hey Romee, I'm Bekka, I'm 20 years old and from beautiful Southern Germany. I'm currently studying musicology and scandinavistics. Other than that, most of my life consists of music - playing instruments, singing in multiple choirs (eff u Covid...) or just making music by myself. The rest of the time I'm either training or cuddling with my doggo - she's sending you lots of love too! I stumbled over your channel a few months ago and been binging it ever since - it always makes me so happy to see you posting a new video. I've been struggling with major mental health issues and chronic pain for most of my life and even though it's something completely different, I feel like I get the feeling of helplessness you get when you're confronted with any health issues you can't control...
My life motto would probably be "Real friends try to pick you up when you've fallen and when they can't, they lay down next to you." <3
Hi! My name is Kiara, I'm from the United States. I'm 22 and I am currently a barista even though I went to college for religion and theology 😂 Sometimes that's how life goes. I love to travel although I've only been outside my home country once, to Peru. Since then I have only visited places in my own country. Hopefully after the virus I will be able to go somewhere else. I don't have a life motto quote but one thing I try to live by is to love God, love people, and live with joy. Love to you all, and happy new year!
Hi! I'm Romina, although I go by Romy (romeeh) from Argentina. I'm 31 years old and have been working as an ESL teacher. Will start studying computer science this year -and some day will hopefully finish my English/Spanish translation degree. I have ADHD and Ehlers Danlos Syndrome. I don't really have a life moto, I simply try to live a life I won't regret and spread as much love as I can. I used to be a fur mum so leaving a picture of my baby boy I miss dearly, just because he was the cutest!
Love to you all x
Hi everyone,my name is Hana and I'm from the Czech Republic. I'm a medical student and I'm more then inspired by your story, it helps me find motivation for studying even when it sometimes feels overwhelming. My life goal is to be able to help people because I can't stand seeing peolpe suffering. Hope you all have a wonderful Christmas time and that you are safe and happy. :-)
You’re going to make a huge difference in your patients’ lives. I wish you the best with your studies! 💕
Hi,@Jennifer ,that's amazing! I've been to Rychvald actually, It's not that far away from where I live:-) have a great day
Thanks, @Kayla, that's so sweet of you ❤ I wish you the best with whatever you're planning on doing this year :-)
My name is Karen my username is my nickname pronounced CareBear! I will be 42 on December 26. Yes I’m a Christmas baby! I live in a suburb of Chicago! I’m a stay at hone mom to a wonderful daughter named Lily! She will be 11 on January 3rd! She’s doing remote learning this year her last year of elementary school! It’s hard not being able to meet with friends and family! I have a 6 year old Bull Terrier named Roxy! We rescued her a year and a half ago! I’m addicted to YouTube.lol I love to watch it! I also love to read. I read every night before I go to sleep! I also love to travel. Sending you healing vibes!
Hello all! I am so glad to be part of Team Romee as together we can send lots of love, support and encouragement her way. I am a Christian women, mother of 4 grown children and have been a Pediatric Nurse for 30 years. I was born and raised in Wisconsin, USA, and have plans to travel to Norway to visit family when doing so will be safe. I’m sending good thoughts your way Romee along with prayers that 2021 will bring you a full recovery from your cancer. You are not alone on your journey as you have all of us rooting you on!! You’ve got this kiddo!!